more on lily...

Ok, here's the full story... I'm a little less emotional right now (just a little), so I think I can handle it.

The Dr. was really baffled when we went in. She didn't gain anything over the week, I think she was exactly the same. He just sat there thinking for a long time (waiting for his "little Dr. voice" he said, haha). He then told us, he wanted her to eat table food, what we eat ground up, as much as she wants. At least 3 times a day, and not to worry about breastfeeding, just let her do it when she wants. And he wanted to do the sweat chloride test for Cystic Fibrosis. Then he said we would check in a week and see what's going on. He said we would probably need to meet with one of the other Dr's at that point that is a specialist in gastroenterology. He decided that he would just go talk to him first, to see if there was any tests or anything he wanted to get a head start on.

When he came back, he said the other Dr. thinks that her labs were off due to slight dehydration, and that it is probably a caloric issue. Since I breastfeed, there is not anyway of measuring how much she is eating, without causing me a lot of stress (not that this isn't stressful anyways) and stress=not good for breastfeeding. So, I have to feed her formula, and a lot of it - 36 oz./day, in addition to whatever table food she will eat. He said that we had the two days to do the bottle, and the only reason he is letting us take the two days is because he knows that we are good parents, and she seems ok (happy, etc.). If she looked bad, he would have made her go straight into the hospital for a tube. Also, he would prefer if he could keep her out of there because of all the RSV sickie kids in there right now - we don't want her to catch that!

They are going to do the Cystic Fibrosis test still, but want to wait until she is fully hydrated so the results don't get thrown off. So, they haven't ruled any other problems out, but need to find out for sure if it's not just a result of caloric intake.

Clarification of the tests they have already done: most likely no leukemia type cancers, most likely no celiac disease (which I didn't think they had done), they didn't get enough to do a test for inflammation.

We have bought every type of bottle/nipple/sippy cup/and formula out there. So far this morning, Dad has tried - no luck. I am going to go give it a try now. Thank you for all your prayers.